9.21.2009

DEMENTIA

"THE MAP IS NOT THE TERRITORY"
Alfred Korzbybsk

Some people think they have their lives mapped out for themselves, then an unfamiliar landscape rises up and changes the map.

That is what has happened in my sisters life.

She worked as a legal secretary, now days called paralegal. She was very good at her job. She always had a very precise mind. Neat and orderly. A place for everything and everything in it's place.

Lois has always taken great pains to order her life and surroundings in a way that gave her control over them.
She is a very Private person.

I'm sixteen years younger and have always thought of her as my elegant sister. She has style! Even now, when she isn't feeling well, she is up and dressed, her hair perfect, lipstick on. You get the picture. Her look is very important to her.

I've always said, "You could wear a gunny sack, and still look stylish, I don't know how you do that?"

We are moving her up to Bend to assisted living. A very nice place just a few streets away from where we live and where our in town brother works. As I wrote before, it is very hard to be making these decisions for someone else, but that responsibility has basically fallen to me, with the moral support from the rest of the family, I'm doing my best for her. I want her to be as comfortable as possible.

Dementia is not something I'd ever read up on before, no reason, until now...
We still don't know what this will mean for her immediate future, or even the long run, but we know her life map has changed, and that right now she needs help.

She ask me last week, "When you lose pieces of your mind, where do they go?"

I didn't have an answer.

2 comments:

Kelly said...

Linda....this is going to be very difficult, but at the same time, it will bring out more love in you than you think is possible. I watched my Grandma Rose go through every stage. At one point, Grandma forgot how to talk, but she could still express the joy in her heart by singing. I would walk in the room and she would just sing "la lalalalal alalalaaaa." She was still in there, whether she remembered me or not. I am very forgetful and absent-minded...and I look just like Grandma. I live my life assuming I will go the same way. It's all okay. My dad would play the guitar for her, and he noticed she and all the other Alzheimer patients loved guitar music. You should play your music for her.

Linda McGeary said...

Hi Kelly, that could be something I'll try. She is still very present most of the time. So far it is only her meds, meal and money she can't seem to figure out. They just confuse her.
The things I read on some of the sites I went to when I did some research, say there are a number of forms of Dementia, Alzheimer's being the worst of them. But not all forms make you forget your family or yourself. So there is hope.
Your Grandma singing made me smile.
Thanks

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